Jayne has more than a decade’s experience in the third sector (former CEO of the Tuberous Sclerosis Association and Director of Policy & Research with the Multiple Sclerosis Society). She has a BSc and PhD in Genetics with postdoctoral research experience. After leaving the research bench, Jayne worked for the Department of Health in Clinical Quality, Ethics and Genetics and has served as an Associate Director for the Centre for Clinical Practice at NICE.
Jayne joined Genetic Alliance UK in April 2017, a UK charity and umbrella group comprised of 220 third sector organisations, that variously provide support, information and funding for research. Genetic Alliance UK is home to Rare Diseases UK which campaigns on behalf of all those affected by Rare Conditions, and SWAN UK, providing support to families affected by “syndromes without a name” which are of likely genetic origin.