Phacilitate Leaders Forum

17th - 18th SEPTEMBER 2019



Jayne  Spink

Jayne Spink

Chief Executive, Genetic Alliance

Jayne has more than a decade’s experience in the third sector (former CEO of the Tuberous Sclerosis Association and Director of Policy & Research with the Multiple Sclerosis Society). She has a BSc and PhD in Genetics with postdoctoral research experience.  After leaving the research bench, Jayne worked for the Department of Health in Clinical Quality, Ethics and Genetics and has served as an Associate Director for the Centre for Clinical Practice at NICE. 

Jayne joined Genetic Alliance UK in April 2017, a UK charity and umbrella group comprised of 220 third sector organisations, that variously provide support, information and funding for research. Genetic Alliance UK is home to  Rare Diseases UK which campaigns on behalf of all those affected by Rare Conditions, and SWAN UK, providing support to families affected by “syndromes without a name” which are of likely genetic origin. 

  • Real thinking forward combining experts in the field from manufacturing, regulatory and value vision” – “great network with strong experience and sharing risks & opportunities
    Jean-Philippe Combal
    GenSight Biologics
  • The conference consistently proves to be a great forum for networking with industry leaders in the development of cellular and gene therapies as well as vendors for important technologies and services.
    Michael Covington
    Juno Therapeutics, Inc
  • It was a very interesting event as all participants, including speakers were ready to exchange, even on the most challenging subjects such as reimbursement, GMP guidance
    Bertrand Alexandre
  • Phacilitate EU delivered it's promise and more, the topics discussed were highly relevant, with very good and professional speakers and panelists. You will see me next year in Berlin.
    Dr Ohad Karnieli
    Karnieli Ltd